Fall 2020 Allison Update... baby steps still

For those of you who have been hanging around for the last few years, I assume you're up to speed.  For those of you newcomers, thanks for coming by and I will bring you up to speed on a journey with my wife's health and out journey over the last few years.  

Allison at day 100 post transplant...

Allison has MS.  She was diagnosed just over five years ago when she began developing some weird numbness in her hand and leg.  It took nine months to get her a diagnoses and just as many doctors as well.  We took a year to deal with understanding the disease and treatments.  There are several tiers of treatment and they are quite costly (lucky for being in Canada and as well her health plan at work has been great).  Within a few years, it was apparent that the treatments were not working for her and the MS attacks were getting more aggressive and more frequent.  At 49 years old we were looking at permanent and continuing disabilities which if left to continue could have left her totally unable to function on her own. 

Lucky for us in Jan of 2019 we were accepted for a still in trial procedure that has been showing significant positive results in stopping the MS attacks from further destroying her nervous system. You can read back through the blog for day by day details of our 7 month life in Ottawa as she undertook a Stem Cell Bone Marrow Transplant.  We were informed that there would be a two year recovery and the chance of complications was high. 

The treatment was intense and left Allison at under 100lbs and bedridden for months on end.  Once leaving the hospital she and I entered a isolation bubble (due to her no longer having an immune system and needing time to regenerate) and still to this day remain here.  Every day is different.  Some days she is still in a lot of pain and others she is somewhat pain-free.  She has been in bed now for almost two years (this November).  She is learning to use her muscles again and retrain neural pathways to get back to walking and such.  We do exercises every day and sometimes something as slight as a wiggle of a toe can bring excitement. 

One of the side-effects of the treatment was the possibility of osteoporosis.  In February after just starting to get back on her feet, Allison turned and broke a hip.  She had surgery and once again began healing.  This has been a significant setback, but we push ahead once again.

Recently we have had some home care physiotherapy and she has worked her way to standing for ten seconds at a time.  She is moving forward.  Her mind is strong and her will is incredible.  Being able to share this journey with all of you has been amazing and we thank you all for every note and good energy we have received.   

This week she got her first haircut in a few years.... the cat has adapted to sleeping with her and stealing her pillow... and she keeps on smiling.

    

4 comments

  • Grace Price
    Grace Price Cobourg Ontario
    Allison you are one amazing women. What an incredible journey you are on and the strength and love from your husband and daughters must be a great help. Your father would be so proud of you as is everyone who knows you. Hugs and prayers for you. Love, Grace

    Allison you are one amazing women. What an incredible journey you are on and the strength and love from your husband and daughters must be a great help. Your father would be so proud of you as is everyone who knows you.
    Hugs and prayers for you.
    Love,
    Grace

  • randy
    randy campbellford
    glad to see things are moving along forward progress is always good !! is osteoporosis side effect a permanent thing or will that eventually disappear

    glad to see things are moving along forward progress is always good !! is osteoporosis side effect a permanent thing or will that eventually disappear

  • Cherri Sanderson
    Cherri Sanderson Hastings
    Thanks for the update Ken. I think of you often Allison and the journey that you and your family are taking. Keep up the good work and know that you are loved.

    Thanks for the update Ken. I think of you often Allison and the journey that you and your family are taking. Keep up the good work and know that you are loved.

  • Kyla
    Kyla Campbellford
    That's a great update Ken! We think of you all often and know that you and the girls are making the best of a strange year and Allison, a difficult disease. Tell her that haircut looks greatvznd it's do good to hear that she is always moving forward. Every day is a blessing and she sure does make the most of each one. Hugs ho you all and we always look forward to the updates. Take care and always love one another.

    That's a great update Ken! We think of you all often and know that you and the girls are making the best of a strange year and Allison, a difficult disease. Tell her that haircut looks greatvznd it's do good to hear that she is always moving forward. Every day is a blessing and she sure does make the most of each one. Hugs ho you all and we always look forward to the updates. Take care and always love one another.

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